Believe Limited partnered with Soleno Therapeutics to create a moving video series highlighting the Prader-Willi Syndrome Association (PWSA) DC Fly-In event. This gathering united 140 advocates, including 50 individuals living with Prader-Willi Syndrome (PWS), a condition marked by extreme hunger and behavioral challenges.

During the event, our team conducted insightful interviews with patients and their families, capturing their personal experiences and challenges managing PWS. These interviews offer a powerful glimpse into the daily realities and resilience of those affected.

The Fly-In focused on influencing healthcare policy, notably contributing to Indiana Senator Mike Braun filing the Promising Pathway Act 2.0 with revised language shortly after the event. This legislative progress underscores the event's impact on advancing healthcare for rare diseases.

The connections fostered at the Fly-In have strengthened our community's efforts to support individuals with PWS. Advocates left with renewed vigor and a deeper understanding of advocacy's role in improving lives.

We extend our gratitude to the families who shared their stories and to Soleno Therapeutics for their sponsorship. Stay tuned for the release of the video series coming soon!

For more information about the PWS Association and the DC Fly-In visit this link.