Believe & BloodStream Media have partnered with Effie Parks, host of Once Upon A Gene podcast for parents of kiddos with rare and chronic conditions and mom extraordinaire, to further share her personal story of raising a child with CTNNB1 syndrome, a rare and chronic condition, while trying to find the non-existent rule book for bringing up such a special kid. Once Upon a Gene features interviews with fellow parents, therapists, doctors and anyone else who wants to share their story!

Listen and subscribe HERE